I really hate this disease.

I’m now on 300mg of PTU (150mg 2x daily) and  120mg of Inderal (1 capsule each morning).

I’m hoping I don’t have a reaction like I did with the 60mg (30×2) methimazole.  The endo told me I HAVE to tolerate the PTU since it’s my last chance.  He doesn’t recommend RAI for me, since he thinks it increases TED risk, and he says he sees signs of TED around my eyes/puffy eyelids (but that could have also been lack of sleep for 4 days and having nachos and pizza for dinner a few days beforehand…  salt!).  My only other option is surgery, but I can not afford that and being off work as well.

The endo thinks it’s likely I will have a reaction.  I’m hoping not.  I’m thinking my ‘reaction’ was really going into hypo state - muscle cramps, joint pain and swelling, redness over joints.  I’ve already decided that if I get the same symptoms again, I’ll cut my dosage of PTU down to half for a few days to see if it goes away or lessens.

I’m keeping a notebook of symptoms and times/dates, etc to see if I can catch a pattern.  I need to call the endo to get all my numbers so I can keep track of those as well.

He said that my antibody level is still extremely high.  Well, DUH!  I was only on the max dose of MM for 3 weeks before being taken off of it.  Not long enough for it to really do anything when the bloodwork was done 4 weeks after THAT and not having any anti-thyroid meds in my system.

Sometimes you really have to wonder about doctors.